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Parkinson’s disease in India

I am copying the actual writeup from two research papers/ articles published in medical journals during CY 2020 and CY 2021, concerning Indian Population effected with PD:

“According to the Global Burden of Disease study (2018), the worldwide burden of PD has more than doubled over the past two decades from 2.5 million patients in 1990–6.1 million patients in 2016 (2). India is home to nearly 0.58 million persons living with PD as estimated in 2016, with an expected major increase in prevalence in the coming years (2). Despite the large number of people affected with PD, insights into the underlying genetic and environmental risk factors specific to the Indian population are limited.”

–   Taken from an article titled ‘Genetic Architecture of Parkinson’s Disease in the Indian Population: Harnessing Genetic Diversity to Address Critical Gaps in Parkinson’s Disease’ published on 18 June 2020 in National Library of Medicine, NCBI. The article mentions it is a Michael J Fox Foundation funded research.

“According to a study, India has 7 million elders afflicted with Parkinson’s.”

–   This above from another article by Dr Reema N, Group Medical Director & COO, KITES Senior Care, Bangalore published on April 14, 2021, in Healthcareradius.in

Between 2 years of reporting (and five years of data 2016 and 2021) the numbers vary from 0.58 million to 7 million. Such is the level of research, statistics, data and commitment to correctness.

Another research paper titled Research in Parkinson’s disease in India: A review by Pratibha SurathiKetan JhunjhunwalaRavi Yadav, and Pramod Kumar Pal on PubMed Central, National Library of Medicine, NCBI concludes as under.

 

Conclusions

This review shows that there is paucity of literature about PD in India. There are very few centers which are doing research in this field. This review shows that the Indian population may differ from the rest of the world in the context of PD, be it epidemiology or genetics or response to treatment. But systematic large-scale studies are scarce to make definite conclusions. The social and psychological issues in our patients are also different. More research needs to be encouraged, so that the characteristics of the disease in the Indian population can be understood better. We would suggest that elaborate research on genetic and therapeutic aspects is necessary. A combined effort of neurologists and other clinicians like psychiatrists, physical therapists, and basic sciences personnel would help in improving the quality of research. This would lead to better treatment options tailored to the needs of our patients in India.

I presume the above is for the entire set of PD patients, with such varied information for the Disease per se, finding out number of people effected with YOPD in India would be even more difficult.

I am searching for correct information including the same for YOPD and will update this space once I find something mention worthy.

Yes, there is great encouraging News though

Parkinson’s Disease has been included in the “specified disability” under Section 2 Clause (zc) of The Rights of Persons with Disabilities (RPwD) Act, 2016.

This Post Has One Comment

  1. Dr Shivam Mittal

    excellent summary! Thank you for your sharing your research.

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